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Member since 29 Mar 2008
Member from Christchurch CBD
Hi there milner, gosh that is hard lines for you, hope that you are doing OK, and that there are people here who can support you. My only experience is with my beautiful sister who had Lupus Erythematosus (LE).
Member since 25 Sep 2007
Member from Miramar
I was diagnosed 3 years ago with Auto Immune Hepatitis which is partially controlled with drugs. The main effect on me is the extreme tiredness which strikes at any time with no warning. The specialist said it is important to keep exercising, walking is the best. I have managed to lose some weight by dieting but could do with another 10kg off.
I would like to hear how you are.
Post deleted at 22 Sep 2009 1:42pm by Scar
Member since 18 Mar 2010
Member from Auckland Central
Hi there. Milner, I too have a rare AI condition - AI Hepatitis, one of two diagnosed in AKL in 2009 ... there is no support group and basically ADHB do not want to start one up, so I would love to meet others with this condition..
please reply here or feel free to email me on: email@example.com
Member since 24 Aug 2007
Member from Auckland
Hey there, i too have Autoimmune hepatitis. It's coming up to 3 years since i was diagnosed. If anyone wants too have a chat you can email me on firstname.lastname@example.org
Member since 01 May 2009
Hi every one, sorry i haven't been keeping up with grown ups posts. but i will now. i'm really keen to be part of a support group. my email is email@example.com.
I'm happy to use my place as a meeting place if needed.
hope evryone is well and hope to hear from you all soon.
Member since 29 Jun 2006
Member from Upper Hutt
I have Myasthenia Gravis; Type 2 Diabetes and Arthritus. I was diagnosed in 2006 with the MG and Diabetes. The Arthritus slowly crept up on me. It has not been diagnosed by my Doctor but my fingers are knarly and twisted and sometimes very painful.
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