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Member since 28 May 2009
Member from Wallaceville
Posts: 1609
Rawinia,I'm so sorry. God bless you and give you Peace
Member since 02 Feb 2007
Member from Mangere Central
Posts: 10243
Rawinia,WHO is to tell you NOT to scream??If you feel like it DO it.And DARE anyone to tell you otherwise.Rant,rave do anything that may give you a little bit of freedom of expression and lighten the horrid load that you carry.The Big C cares not for age,colour,nationality or Richness.You are not alone.There are people who can help.Contact them,for support.God Bless you,Honey.

Member since 26 Dec 2009
Member from Auckland Central
Posts: 16
Hi Rawinia
Cancer cells exist in everyone it is only a question of weather the immune system is capable of inhibiting their growth, there is still a lot of ignorance about this disease even at the highest levels.
It has been known for years that some people are simply immune to cancer which is why some smokers get it and some don't.
at times like this friends are your greatest support.
Take Care
Member since 29 Apr 2010
Member from Northland Region
Posts: 3149
My mother died of cancer. Two years ago, tomorrow.
There are several kinds of cancer, some are treatable some not. Regardless of what type of cancer one has, a network of friends is the best medicine.
Do whatever you need to get yourself through this, Rawinia - laugh, cry, scream - but don't shut others out. Through it all do spend as much time as you can with loved ones. Everyone will benefit from the love and memories shared.
Know that I'm praying for you.
Member since 19 Sep 2010
Member from Napier
Posts: 1119
Not only do you end up dealing with the Cancer but in too many cases one has to fight the system. this video is a quite a long video, but i do have a copy so if u want a DVD then send a Personal Message to me and we can try and sort it.
Member since 24 Jun 2012
Member from Mokau
Posts: 11
Hi Rawinia....
For such a long time the C word had people believe they were going to die.
There is lots of stuff on the internet and heaps of testimonials from people who have defeated the dreaded C.
My Oncologist advised total surgery of both breasts and medication for the remainder of my life. But, when I asked what cancer was...she didn't know! Guess what! I have researched this topic to death and what I have come to know, makes so much sense. The medical profession in my opinion
is so far behind.
Of course I turned down surgery and medication...chose instead, to take responsibility for my own health & well being.
Rawinia...rant, rave, scream to your heart's content...get it out of your system, whatever it is that you need to be rid of. Then I hope you will take the time to consider your options and choose the right option for you. God Bless!
Member since 28 Jul 2010
Member from Auckland
Posts: 909
As some of you may know, my forty three year old daughter was diagonosed with cancer in August last year and given 12-18mths to live.
They have never been able to find the primary cancer, even after every scan you could imagine. If they could find the primary, may know how to treat her.
The cancer is called CUPS, meaning cancer of an unknown primary site.
Her surgeon could only suggest, to have the operation and be cut from underneath the breast, down to the thighs, bowel, and the upper leg.
Obviously the cancer has travelled to these different sites, but now find it has popped up in the groin, the uterus, and the thyroid gland.
Her answer was NO.
Her GP, who she has being seeing for many years, was completely honest with her, when she asked him his thoughts.
The surgeon can cut you open in the hope of finding where the primary cancer is situated, but they can't guarantee this will happen.
Would no doubt come out worse, if she went through with the op.
We remain positive, and my daughter is a fighter, also stubborn, and no way will throw in the towel.
Like her three wonderful sons, and myself, we notice the weight loss, the memory, and other little things, but we all try and keep positive.
Of course it can be very hard at times.
Member since 19 Sep 2010
Member from Napier
Posts: 1119
Good news Folks;
C&P
After a 15-year long battle, the Texas Medical Board has officially ended its crusade to revoke Dr. Stanislaw Burzynski's medical license in an effort to end the use of his pioneering personalized gene-targeted therapy for cancer
Read full story here.
Member since 29 Jun 2006
Member from Moana
Posts: 8
Im another really lucky Big C patient with a malinoma that is now in my bones and a one way trip.It started from a sore type of thing on my shoulder then went haywire.I had about 4weeks in greymouth hospital were I was poo pooed and told it was just a sore and the antibiotics would fix it.About 6 weeks later and no luck just getting worse so in the finish my district nurse went balistic and got me in tpo see a doc who sent me to see the head man of grey hos[pital.He agreed that it was bad and went next door to see a surgeon to fix it.Golf was on the menu so I was put on the get around to it waiting list.About a month later my district nurse enqured how I had got on and she blew her top and back to a doc who got me in to asurgeon.a 3"square peice removed under local then 2 more at Grey hospital under local then over to Burwood for a 2"strip about 12"wide removed under local then 2 opps under Sally Langley at Ch-ch hospital were she removed a hunk Frying pan sized off of my back.She has done her best but sadly for me to late by a few years of ignorant BBBBBSSSS that wouldnt do anything Its now in my bones and thats deadly.Thanks to the health profesionals they shoulde be held up for murder or manslaughter as they have made my later life HELL
Member since 28 Jul 2010
Member from Auckland
Posts: 909
samagain
This is a terrible result and so sad for you.
I know in my daughter's case she was under her own GP and two surgeons. The two surgeons had a different opinion re her options. In the end refused to be operated on because said surgeon could not guarantee they would find where the cancer had started.
I'm happy to say she is a month over her 'use by date' as she calls it.
I can only hope samagain that you will find some comfort that many of us on grownups will have you in our thoughts.
I know that will not cure the situation and know you have every right to be angry.
Special thoughts to you
Member since 19 Sep 2010
Member from Napier
Posts: 1119
Samagain, your story has a number of similarities to that of Ian Gawler.
Last century he battled cancer and in the process it went to his bones and he ended up having a leg and a arm amputated.
Not only did he write a book on his battle but also ended up visiting NZ on speaking tour couple of years ago, check out his books here at his website.
Hope there is some usuable info there for you.
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Member since 07 Jul 2009
Member from Henderson
Posts: 2
There are hundreds of different types of cancer.


Some are benigh and others are malignant.
Its a word that brings a shudder to your frame, because once it is there..
Having to face the reality that ur life is now seen in terms of weeks instead of years.
The frustrated rage, denial, anger, bargaining and finally acceptance.
But how do u get rid of the creeping sneaky unwanted depression that creeps up on u when u least expect it.
How do u stay grounded and cheerful when u feel like screaming....grrrr.