Hi gillybean,
I do hope the symptoms you are experiencing are not a flare up of the Sarcoid. Looking back I think the Sarcoid starting becoming active again for quite a few months before I finally went to my GP - I can't work at all at the moment due to fatigue levels being unbelievable. Hopefully that will change soon.

Hi Mactabby

Yes there are not a lot of people in NZ's with sarc in NZ. And yes any knowledge is very limited. It good that you have chosen not to go on steroids. Thats smart.

> I have read about the Marshall Protocol however being cautious about taking anything that I am not 100% confident that it is actually going to literally heal the condition, I am still looking into various options available.

The MP for sarc does actually work. But it is leading edge stuff. Sure it would be very comforting to have a double blind trial to show to your doctor, but thats not going to happen. The MP is the ONLY game in town, if you want to get better. How does he know, you might say ? Talk to Gus, who has been on it to 7 + years. He tried other stuff, but in the end he came back to it. Or talk to John in Waikanae. Even better go and see them face to face. It was only after I talked to Gus face to face, that I decided to go ahead with the MP. Doctors and specialists, usually are not willing to talk the 10's of hours, to read and study the material. Nor are they willing to take the time to understand why their understanding of Vitamin D is wrong. They also hide behind the fact there is no double blind trial. It took me 6 months of reading the MP, and a couple of books to work out this this was cutting edge science, and not something else. But do you have the time to repeat what I have just done ? Accept it that doctors and specialist will not like you doing this, and move on, and move forward.

If you want contact details for Guss or John send me a private message. They are both happy to talk.

Nick B