- #901199lynaireMemberMember since: January 16, 2013
Replies: 37lynaire January 28, 2014 at 8:15 am
Hi all, I thought it was time to come in and post. I am KiwikevNZ other half. All I can say is that I am so proud of how well Kev has coped with the chemo, operation and now the next row of chemo. For me when we found out about Kev’s cancer it was hard as I had been down this road many years ago with my first husband he had a different cancer and for him it was to late. Kev would always be saying to me sorry I am doing this to you and as I told him it could easily have been me. I was lucky to be working for good people who allowed me to have time off to be with Kev at his appointments. I have not been able to go with Kev for his chemo appointments this time round as have started working with a new family, so have been feeling very guilty that I am not there each Wednesday to support Kev . The time that was the hardest for me was during Kev’s operation as I knew it was going to be a long day and with being told that things could go wrong I was on edge till I got the Specialist phone call to be told that everything went well and I would be able to see Kev soon. What a relief it was when I got finally to see him and know that he was doing alright. I also find it hard leaving Kev at home alone now as it is a long day for him and with me being home all over Christmas it was great to have our special time together. As Kev said we have our first grandchild due in April and we are both so looking forward to this. Also I am really looking forward to our move to Rotorua when this happens it will be so good for us both. Thank you all for your kind words and those others who are going on the same journey as Kev, I wish you all the best with your treatments and hope that 2014 is a good one for everyone. Have a great day all.#901201KwixyMemberMember since: May 27, 2007
Replies: 126Kwixy January 28, 2014 at 6:19 pm
Nice to meet you too Lynaire and I am sorry you are having to deal with this a second time but we all will do everything we possibly can for those we love, and whom we also know, would do the same for us if the situation was reversed . My poor man went through two bouts with me, and I never dreamed that I would end up being the one left here. I got through my illness and then low and behold if my lovely man didn’t get it too. He was told 7 months but managed nearly 2 years after that. If only we had cottoned on to what was happening earlier. Some of these cancers are almost symptomless until it is too late.
Yes, I can agree with yu Lynaire the hardes day and the longest day of my life was the day my late husband had his operation to remove 2/3 of his liver. It would have regenerated and he could perhaps have recovered, but it had already gone into the main hepatic artery.As I say, if only he had been seen even 3 months earlier. His only sympton was extreme tiredness to begin with, and he was working very hard , under stressful conditions for the months leading up to this, and he just thought it was that .. the job, needing a holiday you know.
My grandchildren have been a real blessing . They gave me back a reason to want to carry on, and they light up my life every day. I have been saddened that they never knew their grand dad, but they are all lovely, boys and I see him in a couple of them quite often. He may be gone, but he certainly left some of his genes behind !
Yes, life can sure toss some corved balls, but hey… let us all hope that 2014 will be kind to us all and as long as we can live each day as it comes , and look forward to each one of them, that is the main thing.
Love each other !#901203LoyalMemberMember since: March 1, 2010
Replies: 17016Loyal February 2, 2014 at 12:18 pm
Hi there am back again. Nice to hear your side of whats been happening Lynaire, so glad you shared. LOL Kev about raiding the fridge. I sure try not to do that at night, however who knows…I guess if one gets hungry enough why not:lol: After all theres plenty of times when one doesn’t feel like eating, so just go with the flow. I come more from the angle that the food just might keep me awake at a time I don’t want any help with that.
Been for my Hamilton trip, long way for a short appointment. The specialist was ok, but said one daft thing relating to any further problems in the future & that in 20 or 30 years I’ll be such a grand old lady that basically it wouldn’t matter anyway, thats if I was even alive then he said. Huh, I mentioned that I would like to be a ‘healthy’ old lady actually if possible, as I won’t want to be ill then any more than I would want to be now. Blimin heck I thought, he looked approx. 5 years older than me at a guess & I wanted to ask him if he’d like to be ill when he’s much older than he is at present. (Admit I thought patronizing twit at this point!!) However I was a good girl & held my tongue, & told myself that regardless of his silly statements that he was still knowledgeable in his field. However wisdom & bedside manner he did not have:| Never mind, all will be well.
Had 4th treatment of 6 on Thursday. Feeling odd & seedy atm.
Thankyou Kwixy for sharing too, so sorry to hear of you loosing your lovely man, and when he would have been such a support to you back then in your time of need there would have been absolutely no way you’d have been expecting that!! Enjoy those Grandchildren, and as you say they are such an exreme blessing….words cannot describe it.:D
All the best everyone.
Loyal - Bay of Plenty 🙂#901205lynaireMemberMember since: January 16, 2013
Replies: 37lynaire February 2, 2014 at 12:39 pm
Good Afternoon everyone, Kev has been feeling odd and seddy as well atm. He has been saying it is hard to put your finger on what it is and it’s hard to explain to others. Loyal you made me smile when you remarked about the Doctor. I had a hospital appointment for myself the other day (A woman thing). Had a female Doctor and I felt it was a waste of my time going as I felt she didn’t listen to me and didn’t even check things just gave me some pills and said I will be discharged back to my GP. Thought she would have at least looked at the notes I had been keeping for them and done a check on my blood pressure etc. Good luck with your treatment. Have a good day everyone.#901207KiwikevNZMemberMember since: January 13, 2013
Replies: 22KiwikevNZ February 3, 2014 at 1:13 am
here i am up having a fridge raid LOL, couple of slices of chives cheese, one of my reasons for having a nibble during the night is that as part of my operation i had my stomach door removed if you like, so if i slip down off my upright position in bed i get a back flow of whats in my stomach i guess you could say its like a acid reflux…a nasty taste and flavour so i use a little something to get rid of those yucky tastes. argh the dreaded feeling “odd and seedy” its just something that comes with radio or chemotherapy even the doctor knows what i mean (only because so many ppl have it) but he cant explain it either its just one of those feeling where ya feel off ya game and could if ya wanted to be sick without to much effort, i never plan going out to far when i feel like this just in case lol. onto my 2nd week of chemo, week 3 is when the immune system crashes i always worry about me week 3’z and try to stay away from anyone feeling unwell in any way, this time round i have 3 open wounds still from me operation i will be keeping a close eye on those. have a good week everyone and remember to keep on smilin 😆#901209KiwikevNZMemberMember since: January 13, 2013
Replies: 22KiwikevNZ February 3, 2014 at 1:20 am#901211happyshepherdMemberMember since: July 8, 2010
Replies: 40happyshepherd February 4, 2014 at 10:11 pm
Thanks for the diagram. It does make things clearer. I can see why you are having digestion problems, your stomach is just about in your throat. Pity they can’t put in a "plastic or whatever" tube and leave your stomach where it was designed to be. I think you are VERY brave ( I was going to say "gutsy" but that does’nt seem to be the correct word in this instance!! ) You deserve to be completely cured after all you have put up with and, if there is any justice, you will . Thinking of you and wishing you all the best. KEEP SMILING !!!#901213LoyalMemberMember since: March 1, 2010
Replies: 17016Loyal February 5, 2014 at 11:33 am
Hi folks. Gee Kev I can see now why you have to get up and scan the fridge at night, the diagram makes it so clear. Like Happyshepherd said its a shame they couldn’t somehow make it a more natural length between your stomach and actual neck. But then who am I to have an opinion,lol, the experts know all about what is best we hope, and they have sadly dealt with this situation many a time.
My turn for prowling the house in the night last night. Been awake a lot at night the last few nights. Didn’t help that hubby was called out on a callout for work at 6pm when he was just about to make his way home. (Same thing Sunday, called out 6.50am, finally home 7.20pm:roll: ) Not his fault at all, but amazes me how everyone expects to have 24/7 service these days….no consideration about bugging someone at disgusting hours. In these cases it did have to be dealt with however but a bit of help from other staff would have been appreciated in our situation. Apparently biking with the local bike club was way more important. (don’t get me wrong, biking its good but this particular guy does it several times per week, & one would have thought he’d have had a bit of compassion & helped hubby out.)He got home 10pm to have to cook himself & I a bit of tea, as I have been most unwell last several days and unable to do it right now. Quite late before baths & everything done. Soooo, I guess that led up to a rotten nights sleep…who knows?? So many side effects this week, they changed the "stuff" they were using with chemo last Thursday….wasn’t expecting to feel quite like "this"….a different form of "this" that is if you get my drift. Keep tellin’ myself this aint forever!!! Feels like it atm though.
Well yep, off I go now to carry on smiling! Hopefully I can:shock:;):)
Loyal - Bay of Plenty 🙂#901215kaiMemberMember since: January 4, 2008
Replies: 9456kai February 5, 2014 at 12:18 pm#901217kaiMemberMember since: January 4, 2008
Replies: 9456kai February 5, 2014 at 12:20 pm
Think of you all on this thread and the times you are going through.
Sorry did the piccy then the message But its been a while since I used PB so was groping in the dark!!
Kind Regards all
Cheers From Kai
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